Rare Disease Day 2021
With over 300 million people living in the world with a rare disease it is important to recognize, support, and understand the trials that many rare disease patients, including those with RP, face. February 28th encourages people around the world to join together in a unified voice and give awareness to the over 6000 diseases that are known today.
Rare Disease Day at the NIH
The CSRP is proud to be virtually represented at the 2021 Rare Disease Day conference at the National Institutes of Health (NIH). This event will not only put faces on those living with rare diseases, but encourage an international dialogue about how to better support them.